Today I got my hair cut supershort because it's all been falling out. That's what it does when I'm in pain. It looks much fuller--like anyone else's--when it's short and very layered. The bald spots definitely don't show. My hair is very curly, so the shorter it is the more springy it is, easier to hide those bald spots. A lot of it had fallen out last fall, but I'd had a lot of new fuzzy growth that had been coming back in and made my hair a little wild--until that fell out again too with the surgery. Hair from pain loss isn't permanent. It can grow back in again.
I always get it cut short when it starts falling out. Why pull down the follicle with more weight? A lot of people don't like it this way, I can tell. They don't know why I make such changes. They don't realize how many decisions are made on the basis of a disability. What if it were because it's easier and it pains me to reach and my husband's no good at styling it? That's why a couple of women I know with disabilities go with shorter hair. Others stay with longer hair because it's part of their style and their individual trademark. I wish others would show some support.
I'm glad that I had a lot of hair to start with. My sister and others say they notice a difference but that people who didn't know me well wouldn't know. And now they definitely won't know.
I don't quite like it being supershort since I can't pull it back but I do like it looking as if I have adequate hair! My husband, who's been looking at the shower drain in horror, said if I lose more I can get a wig. Gack, that would be too hot and expensive.
I feel more confident this way. At times it's been severe enough in spots that I've been terribly embarrassed but mostly been able to hide it.
The arthritis pain after that hurricane-eye respite is back with a venegeance and I'm looking for something--anything--to help with it. I will try cherry juice concentrate and bromelain tablets and see if that cuts the edge off it at all (antiinflammatory effect), or I may go to the big gun pharmaceuticals. I've already been eating foods with more sulfur content (that's what's in Celebrex, which I'm allergic to). Can't deal when pain meds don't cut the pain enough. I have arthritis in the base of my left thumb now, and I've not been doing anything to overuse it and my knee and heel and hip and upper spine/shoulder hurt too, and this time it's both SI joints, not just the left one. What is it about late summer that always gives me these flares?
Since humor is the best medicine and I love funny movies and books, I looked for medical humor on Amazon. Other than Patch Adams, most of what I saw was a large imbalance with doctors writing of their experiences with patients. Browsing one of the books made me glad I didn't go to medical school--what horrors med students and doctors have to deal with in the ER! Really, truly trust me on this, don't go looking it up. Ick, ick, ick. I'm not talking run-of-the-mill GI or skin problems. What is okay to share is that one book has several sections on patients with Munchausen's, who had faked diabetes using their spouses' insulin, had implanted the bladder with small river rocks to replicate stones, had deflated their lungs with hypodermics, had injected themselves with bacteria, and had physically assaulted doctors in order to get narcotics. Why, for the love of God, why?? I can't see that anyone could anything out of it and what they do to themselves makes me cringe. Gaaah.
Weirder was the story of the older patient who, when wanting to order a hospital bed, was taken to the hospital and assigned to a bed there against his will and his protests ignored! ("Are there any hospital beds available for Mr. Jones?") I can see how this could happen since I've had something similar happen.
What I couldn't find are any medical humor books from a patient point of view.
Family's back from ice skating, got to go.