Friday, September 26, 2008


Has anyone else heard of synvisc for knees, some kind of injection that's supposed to build up the joint? While I can find most anyone who's on some kind of medicine or has had some kind of procedure, this one is new for me. The rheumatologist suggested it on the phone if things get worse, though it may just be another carrot. The knee pain is far outranking the SI pain right now, though putting the gel cushion under my seat helped tonight.

Yes, I've googled, but I find what's in the prescribing info to be one dimensional.

How can girls get better within a set of volleyball games? The difference between the first and third games tonight was surprising.

I ran into a friend there tonight--we used to see each other at least several times a week, and for a while every day, for seven years. We met when our first babies were a few months old. When our youngest kids headed to separate kindergartens a few years ago, we saw each other less and less--now it's been a year and a half. How does time get away from us, how can we miss seeing people we like so much? She saw me first and called to me, didn't blink an eye about the scooter. I said, my back got worse, she said, "I can see that." Nice how we fell right back into our old chattiness right away. Glad I will be seeing her weekly for a while. I needed that. :)

(Synvisc: which part of the bird do they make it from exactly?:
"tell your doctor if you are allergic to products from birds—such as feathers, eggs or poultry.")


Disgruntled Ladye said...

Everything I've seen about synvisc suggests it's more for osteoarthritis than inflammatory arthritis. Synvisc and other fillers like it are supposed to supplement a limited supply of synovial fluid in the knee. I think the main goal of the stuff is to help hold off knee replacements in those with existing damage. AGain, that's just what I've been able to glean from the limited info available.

If only someone could come up with a good SI joint treatment, I'd be all over it.

Oh and for your previous post about no biologics. I'm so sorry. Remicade has been a godsend for me--even during the times it doesn't work completely. I had the "inflammatory arthritis" label for awhile before getting a dx of Psoriatic Arthritis. Anyway... If you continue to have inflammation and your current rheumatologist doesn't want to use a biologic, I'd suggest getting a second opinion. There seem to be some rheumtaologists out there clinging to old ways and not prescribing biologics to anyone that has spondylarthropathy (though they'll gladly prescribe to RA folks).

FridaWrites said...

Thanks so much for the info. I'm not sure if I have the same kind of arthritis in the knee or not--he did think osteoporosis there, but I'm not sure how he's drawing the conclusion. It seems like it would be important to know.

Yes, I hear you with the SI joint treatment! Either cauterizing the nerves as they can do for the vertebrae would at least help with pain, if not range of motion. I have seen that one trial says injecting Botox there is effective, but I can't see how since there's not muscle within the joint.

I'm really do thinking I need a second opinion. It definitely wouldn't hurt anything to have someone give a fresh look over everything and see if they confirm or have different ideas. There's a really good one I know of though he takes even longer to get in to see than most rheumys.

Thanks so much for your comment.

D Phoenix said...

It sounds like D.Lady might have something there with the second opinion idea given her experience with biologics. Of all the specialists I have seen, I find rheumatologists to be the oddest personality-wise and the most likely to have set patterns of treatment.

We'll have an SI party should something good come our way!

As for the synvisc, I've seen it advertised on TV a lot lately and that always makes me wonder why a doc would suddenly suggest it. I wonder how stable it is and what happens if the substance leaks into your system? If the discs are low in fluid because of arthritis, doesn't that mean you have a porous disc already? So the synvisc will leak out slowly. I would be sure it won't cause a autoimmune problem like leaking silicone breast implants do. That would be my concern about it.

FridaWrites said...

I haven't seen the commercials, but I haven't done much TV watching lately. The docs do get suckered in by advertising too. This rheumatologist can be quirky, really. I've also heard neurologists can take the cake.

An SI party sounds like a great idea--and we'd all be able to stand up!

lexielin8352 said...

I had synvisc injection 3 days ago and still am so swollen and in so much worse pain I can barely stand it. I am part time hairdresser, but if this doesn't go away soon I will lose my job. I went to work yesterday dragging my leg around because I can not put pressure on that leg. Everyday I wake up thinking this is the day that it will absorb the synvisc and my knee will quit being swollen and in pain. Has anyone else had this problem? I have had the injections several years ago and they worked great. Something really went wrong this time. Please someone let me know if you had this reaction and how long it lasted.